
I have IBM.
It does not have me.
One woman’s journey with Inclusion Body Myositis.
Hyperbaric Oxygen Therapy
Welcome to this blog post. Today’s installment shares Linda’s experience with hyperbaric oxygen therapy.
Coping with Dysphagia
Welcome to this blog post. Today’s installment has Linda talking about how she copes with her trouble swallowing.
Care Team: Acupuncture
Welcome to this blog post. Today’s installment is about Linda’s experience with acupuncture.
Care Team: Massage Therapy/Cupping
Welcome to this blog post. Today’s installment has Linda talking about recent massage sessions.
Tips and Tricks: Out and About
Welcome to this blog post. Today’s installment includes tips and tricks from Linda that can help when you’re out and about, doing chores, traveling, hanging out with friends, and more.
Draft Tips & Tricks: Household Chores
Welcome to this blog post. Today’s installment has Linda sharing some thoughts on how to continue to work effectively in the kitchen and doing chores.
Tips and Tricks: Self Care
Welcome to this blog post. Today’s installment has tips and tricks from Linda about self care.
Tips and Tricks: Home Accessibility
Welcome to this blog post. Today’s installment contains tips and tricks from Linda about starting to think of your home in terms of present and future Accessibility.
Visit to UC Irvine to participate in a natural history study of IBM
Welcome to this blog post. In today’s installment, Linda talks about her recent trip to Irvine, California where she participated in the INSPIRE-IBM study.
Care Team Issues: Snake Oil Salespeople
Welcome to this blog post. Today’s installment has Sherri sharing a few tips to avoid snake oil salespeople.
Wanting to Help and Protect
Welcome to this blog post. Today’s installment has Linda’s daughter Sherri talking about helping and about waiting to hear someone ask for help.
Care Team: Functional Med Chiropractor
Welcome to this blog post, where Linda talks about visiting a Functional Medicine-oriented chiroporactor.
Care Team: Mental Health
Welcome to this blog post. Today’s installment has Linda talking about her care team, this time sharing how she hired a psychologist to help with the stress of hearing her diagnosis.
Care Team: Overview & Main Docs
Welcome to this blog post. Today’s installment is Part One of a series about finding/creating a CARE TEAM. I hope you enjoy it.
We’re All Getting Older
Welcome to this blog post. Today’s installment is written by my oldest daughter about how she’s felt watching the progression of the disease.
Fall Comes in September
Welcome to this blog post. Today’s installment tells the story of how I fell at the Portland airport.
Poem: Jane Hirshfield
Various spiritual traditions have much wisdom when it comes to dealing with challenges. Buddhism is particuarly focused on using the hardships of life to grow spiritually.
My Time at the 2023 International Patient Conference
Welcome to my blog. This post talks a bit about what I experienced and learned at the recent Myositis Association International Patient Conference.
Traveling the Twisting Road Together
As Linda’s husband, I’ve found my role in her life expanding as we navigate the winding road ahead of us.
The Diagnosis & Hope Tempering Fear
I was eager to finally find out the cause of my medical issues, but I was not prepared for the diagnosis of IBM. After experiencing fear, I also found hope.